5 Tips For Traveling With Crohn’s Disease And Arthritis

5 Easy tips for traveling with Crohn’s Disease and Arthritis!

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1) Check With Your Doctor

It’s always worth running your travel plans and ideas with your doctor. Your doctor should make sure you are healthy enough to travel and recommend any needed vaccines if you are going out of country. Your doctor can also make sure you have the right prescription so you don’t run of out medication during your trip! Talking to your doctor about your travel plans is a no brainer! Whenever I am planning to go anywhere I send a message to my Doctor through MyChart (Web Portals differ by provider but most have messaging capabilities). Sending a message to your doctor through a web portal is usually sufficient, but it may be a good idea to see your doctor in person if you aren’t doing well.

Remember, if your doctor says you’re not healthy enough for travel LISTEN! Trust me, it sucks being sick on vacation and it really sucks having to be airlifted off a cruise ship because you are really sick! Click the link to check out my Coast Guard Medical Evacuation from the Norwegian Pearl: https://www.facebook.com/kayden.nelson.9/videos/t.505454278/45145023042/?type=2&theater)

2) Pack Your Medications

While this may seem like a no-brainer there a lot of people who are hesitant to bring their medications on their trip due to various reasons ranging from being nervous about going through security with them to being worried about them getting damaged while traveling. While these are valid concerns there are some easy solutions!

It’s totally fine to bring a valid prescription with your name on it when you travel. Just make sure the prescription isn’t expired and your name, the pharmacy’s name, and your doctor’s information are all on the prescription bottle and you should be good to go.

If you are on a biologic like Humira, Remicade, Simponi, Entyvio, etc. make sure you don’t miss a dose while you are traveling. If you get your medication at an infusion doctor, talk to your doctor about either getting your infusion a little early or taking it late. Usually earlier is better but always talk to your doctor and listen to their recommendation (Another great reason to run your travel plans by your doctor first). If you take your medication at home reach out to the drug company about getting a travel kit. Simponi makes a great travel kit with information to help you easily get through TSA and keep your medication cold while your travel.

Simponi Travel Kit Information: http://www.simponi.com/rheumatoid-arthritis/get-support/treatment-support/travel-pack

Humira Travel Kit Information: https://www.humira.com/humira-complete/ongoing-support

3) Have a Plan

When it comes to being prepared it’s always better to be safe than sorry. Even if you are in remission, it’s always good knowing where your insurance is good at and being aware of any out-of-network costs. Always have contact information for your doctor, pharmacy, and any necessary drug information with you–you’ll never know when you’ll need it! A good trip can turn into a horrible one fast if you start having symptoms and you’re unable to get the care you need–Always error on the side of being too prepared. I always save all important contact information into my phone, and I carry a Medical ID card in my wallet that explains my conditions and necessary medications.

4) Don’t Over Do It

If you are like me, you all about having fun and doing much as possible! While this may sound good in concept, sometimes we can get too tired and stressed from traveling which could cause a relapse. It’s a good idea to set realistic expectations on what all you’ll be able to accomplish while on vacation. One of my favorite vacations is taking cruise! If you’ve been on a cruise, you know these are 24/7 non-stop vacations with something always going on. I always find the activities going on that look fun to be and do them while always mixing in a little rest and relaxation. You can still have an amazing time on vacation and do almost anything, but just be careful to listen to your body. If your body needs a break, give it one! If you overdo it you’ll probably end up regretting, so just take it easy and have a great vacation!

5) Have Fun

The most important thing to remember is to have fun! You’re on vacation, free from all the stresses and cares of life. Take it easy and enjoy yourself! You probably deserve a nice break from everything going on, and a vacation is a great way to come back relaxed and refreshed. Don’t worry about all the little details, just relax and have a care-free vacation! A break from all the stresses of life is probably just what your body needed! This is your time to kick back and relax while taking care of yourself! Enjoy!

Comment your helpful travel tips and vacation memories below! Thanks for reading 🙂

 

Author: Dylan B Nelson

After being diagnosed with Crohn's Disease, Avascular Necrosis, Enteropathic Arthritis, and an Atrial Septal Defect, Dylan like so many other people with chronic conditions struggled to manage his health. Being frustrated with the current solutions, Dylan helped create mediswarm.com, a social health network where it's easy to meet other people with the same conditions. Users can ask questions and get real answers, see top solutions for their conditions, and get support from a community of people just like them. Dylan's ultimate goal for MEDI+SWARM is that it can become a resource for individuals who have chronic health conditions to get the help they need and to help improve their overall health outcomes.

8 thoughts on “5 Tips For Traveling With Crohn’s Disease And Arthritis”

  1. Thanks for the good info. I’m going to Disney world next month with the kids/grandkids and was just thinking I should see my primary doc two weeks ahead so that I could ask what to do if I go downhill and have to hit the ER while I’m there. Best to be prepared!!

    Liked by 2 people

    1. Have an awesome time! Disneyland/DisneyWorld used to accept signed letters from your doctor stating that you have a disability that affects your mobility and would issue you a pass to help minimize time standing in lines, walking, etc. Now Disneyland/DisneyWorld no longer accepts your doctor notes and the employee at guest relations gets to decide if you get accommodations. Unfortunately, I look like a healthy, normal 24 year old and the employee at guest relations thought my doctor note was bogus so I spent the majority of my vacation at the hotel :(. I’d try contact in Disney in advance and see what can be done! I hope you have a great vacation!

      Liked by 1 person

      1. Thanks for this info. I’ll get my travel agent right on it as not only do I have issues, but my DIL has MS.

        I hear you. I think half my family thinks I’m milking my illness for attention as I don’t look as obviously physically compromised as my DIL. If only they could see my lungs, and we won’t even mention the rebellious GI tract…

        Liked by 1 person

  2. Great tips! I enjoy traveling, so I always make sure that I have enough medication on hand and extra (in case I’m delayed). I don’t check with my doc for anything other than infusions. I’m planning to travel out of country this year, so we’ll have a deeper conversation about shots, precautions, etc. Great post, Dylan. 🙂

    Liked by 1 person

    1. Thanks, Michelle! Traveling is one of my favorite passions as well! It’s always a good idea having extra medications and having your infusions planned out. I hope your doctor helps you prepare for the best year of traveling yet, and you share with us your favorite moments! 🙂

      Liked by 1 person

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